The New Bubble Girl (banyangirl1832) wrote in thequestionclub,
The New Bubble Girl
banyangirl1832
thequestionclub

I might cross post this to the LJ alzheimers group but they're usually pretty slow/limited in responding to posts. My main question here is, what would you do, TQC?



Background: I'm twenty four, graduated from school and living at home with my dad and grandma. Grandma has Alzheimers, has had it for years now, and it's steadily been getting worse, as Alzheimers tends to do. She has home health aides who come in the mornings and get her dressed, but my dad or I will give her her meds and breakfast in the mornings. She goes to an adult daycare facility during the week, but on the weekends, I'm her sole caregiver unless I've planned an outing a few weeks in advance. My dad works on Saturdays and often goes to see his boyfriend (who lives in another state) on Sundays. My boyfriend comes and spends the weekends at my house, which helps me a lot, but it doesn't allow for much of a social life. I guess I'm just frustrated and feeling trapped. I don't have any siblings and there aren't any other family members around who can come to hang out with her if my boyfriend wants to take me on a date, for example. Kids my age are out having fun, going to bars and parties, or at least have the option to do so. I'd love to just be able to pop down to the farmers' market and walk around downtown without having to worry about getting back in an hour (since she has wandered in the past, we don't like to leave her alone for too long). Proper nursing homes are too expensive for us to consider them, and there's some problem with the amount of income she makes for her to be taken on for free. This arrangement has been going on for a good eighteen months now, and I'm just getting tired. Any advice for me, TQC?

DK/DC: Seen any good movies recently?
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